Dorothy was right, there is no place like home. B was so happy to finally get discharged from the hospital on Friday. He still needs to take major medications, some for the next six months, and will have to go back for tests but at least he'll be able to sleep in his own bed. Neither of us has gotten much sleep the past couple of nights and he is still getting sick, not eating much and has a headache but it isn't as severe as it was a month ago. I'm nervous being his only nurse so I'm keeping my fingers crossed he will just get better and better each day.
We're actually going to try to get out of the house today to go visit his sister and maybe even do a little swimming in her pool. We may not be able to stay long depending on how he feels but it will be good for us both to get out and get some fresh air. The weather is beautiful here and it will be nice to get out an enjoy it.
Get out and enjoy it while it lasts.
Thursday, August 7, 2008
It's amazing how quickly your priorities change when you get hit with a serious crisis. Right now I could care less about the bullsh*t at work, I haven't stepped on the scale in weeks, I haven't thought about meal plans and workouts and I'm not worrying about the laundry piling up. None of that crap is important right now. My thoughts are totally focused on B and I'm praying he starts feeling better soon. The doctors told him he will be in the hospital for at least another couple of weeks if not longer. He is taking a staggering amount of medication and having painful procedures almost every single day. I just wish there was something I could do to make him feel better. Loving him with all my heart doesn't seem to be cutting it.
Sunday, August 3, 2008
We missed today's annual ATV ride up Mt. Washington. B and I had been looking forward to this ride since I took this picture last year but sadly we were stuck on a roller coaster ride from hell and now have to wait 'til next year to get up on the mountain again with the ATVs.
B had been in and out of the hospital for the past three weeks where they kept pushing him out with medications and antibiotics and a diagnosis for sinus headaches, then migraines, then maybe they thought it was cluster headaches. B and I knew it couldn't be just a headache. Could a sinus infection (sinusitis) be that bad? He kept getting worse and worse and they kept sending him back home. The last time they discharged him we were arguing with the doctors because he couldn't eat or drink and wasn't able to keep his medication down so how was it supposed to work and make him better if it didn't stay in his system more than 20 minutes?
When I got home from work last Thursday B was out of it, slurring his words, talking nonsense, babbling incoherently, I thought he was having a stroke. I rushed him back to the ER where they started going through the same routine as the last 5 times when they FINALLY agreed to do a lumbar puncture ("spinal tap"). Every time he went to the hospital over the past three weeks they would ask if he ever had this procedure but then they would say they didn't think it was necessary.
Come to find out, it was absolutely critical to make the correct diagnosis of B's severe headaches, nausea, stiff neck, etc. After three F'N weeks of suffering they finally figured out that he has meningitis. Initially they didn't know what type he had so they go on the assumption it's contagious so everyone had to wear masks and gloves. They suggested that anyone having close contact be tested and put such a scare into us about all the things that could happen, the worst being coma and/or death. To say I was a mess is a pathetic understatement. I was hysterical.
I'm so exhausted from being at the hospital and watching B suffer for so long. Then, of course, I started getting getting paranoid about every little ache and pain thinking I must have caught it too by kissing, drinking from the same cups, and being in close contact with him. They wanted me to have blood work done so they could check if I needed to have a lumbar puncture too. UUUUGHHH!
After doing another spinal tap Friday morning, they decided to transfer him to another hospital. B is now at a top notch facility where they have a team of meningitis specialists on staff and I think he is now finally getting proper treatment. Thankfully he is being seen by numerous neurologists and infectious disease specialists who seem to know what they are doing. It's about time.
They determined he has viral meningitis and also, the rarest form, fungal meningitis. Unfortunately, he keeps having to have the lumbar punctures which are painful but necessary to drain the fluid build up to take the pressure off his brain and optic nerves. They assured us he wasn't contagious and there was no need for me to be tested. There are nurses, doctors and specialists in and out of his room all day and night and they are taking good care of him but he is still in pain and has ups and downs but he's a tough guy, he'll get through it and we'll be able to get to the top of the mountain someday soon although we'll have to wait a year to go up on the ATVs.
Meningitis is such a serious illness that can have devastating consequences. We are very lucky he is going to be ok especially since the doctors dicked us around for three weeks. It heart breaking to watch him suffer but I know he'll pull through and we'll be able to go back to our same old boring routines. That day cannot come quick enough for me.
This is one summer I'm going to want to forget. I hope you are enjoying yours. Be thankful for those lazy, hazy days of summer as long as everyone is healthy.